Partner Feedback

Martha Stone

CEO, STERITAS

By engaging patients in thousands of conversations, Kathy’s team gathers actionable insights that influence scientific, medical, real world evidence, and commercial spheres of the company. The very engagement that supports each patient, and strengthens internal corporate functions, also builds market demand for safer, more effective approaches to managing disease. By empowering an entire community of patients for shared decision-making with their doctors, Kathy’s contribution to better health outcomes is patient engagement done well.

Glenda Thomas

Owner, nCeptive

Network Patient and Rare Diseases Patient Advocate

Member of Massachusetts Rare Disease Advisory Council Steering Committee

Beth Israel Deaconess Medical Center Division of Clinical Informatics

Kathy Perez is an exceptional leader in the patient advocacy world. Her deep understanding of the complex landscape of patient advocacy sets her apart as a true expert in the field. Kathy possesses a rare ability to bridge the diverse and often nuanced needs of patients across a wide spectrum of rare diseases, consistently delivering comprehensive, meaningful resources to the broader patient community.

Her in-depth knowledge spans the patient, healthcare, and pharmaceutical sectors, as well as policy and legislative frameworks. This breadth of insight allows her to identify critical unmet needs and implement solution-driven programs that produce measurable, lasting outcomes for all stakeholders.

Kathy’s support has been instrumental in my personal advocacy journey. She encouraged me to share my patient story, helping me amplify the real-world challenges of living with a rare disease. Through her mentorship, I’ve grown into a confident and recognized patient voice, particularly within the myasthenia gravis community.

Her leadership, compassion, and unwavering commitment continue to inspire me and countless others throughout the rare disease space. Kathy is not only a strategic visionary but also a tireless advocate whose impact resonates far and wide.

Stacey Frisk

Executive Director

Rare Disease Company Coalition

Ted Brasfield

VP of Alliance Development, EveryLife Foundation for Rare Diseases

Kathy brings a wealth of expertise, experience and compassion in working with patients, patient communities and advocacy organizations. In addition to her deep knowledge, she also has an undeniable passion for the rare disease community where the unmet needs and opportunity to make a positive impact are so large. Kathy has been a tremendous partner in our efforts to educate patient communities and organizations about the power of advocacy, and she will undoubtedly bring that same energy to supporting biopharma clients in their efforts to establish and maintain truly meaningful relationships. Kathy’s ability to develop authentic, two-way partnerships sets her apart and makes her a true pleasure to work with.

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